These last few days have been some of the happiest of my life.
On Friday Felix was discharged from the hospital after 41 days. (Which is nothing compared to the 149 we did the first time.) It was a week after I gave him his last ADA injection. (He’d been receiving them twice a week for the last seven months.) Hooray!
We’d been waiting on some final blood work to see whether it was safe to bring him home. The results we got Friday morning were far, FAR above our expectations. (So much so that at first we were convinced it had to be an error.) The most important news we got was that Felix’s corrected cells have engrafted. His body is making its own ADA! The gene transfer is working!! (We won’t know whether the therapy was truly effective, however, for another four or five months). If we had the time and weren’t in isolation, I would totally have organized a party.
Our primary doctor was about to head out for vacation so she was particularly thrilled — after delivering the news she blew out of there with a huge weight off her shoulders. We walked out a few hours later without a note of fanfare.
Once again, I discovered that being home was even more wonderful than I’d anticipated. Our home is just so beautiful and cozy and perfect. (Even with half the siding missing.) I love it.
Felix is doing better than ever now that he’s home — his sleeping and eating have been fantastic. I feel like he’s already making progress developmentally after just a couple of days. He can always tell when we’re happy.
Sunday we celebrated Lydia’s fourth birthday at my in-laws’. We had a barbecue and I made my signature chick pea chocolate cake with beet cream cheese icing. Lydia had a ton of fun in the kiddie pool with her cousins and friend. It was a holy day.
The following day, her actual birthday, I was able to go to my parents’ house in the evening and put her to bed. What a gift it was to braid her hair, read her Bible story, and kiss her cheeks before tucking her into bed.
Ben and I also quietly celebrated our tenth wedding anniversary this weekend. We’re hoping to go out for dinner and a movie yet sometime this week. Ten years!! can you believe it?
I’ve done plenty of things wrong in my lifetime, but marrying Ben is the one thing I know I did right.
At home, I’m going crazy trying to reorganize our home for when we all live here together. I love it.
Thank you, thank you, thank you, everyone, for helping make this week happen. Your prayers, financial support, and emotional support (and Ontarians — your taxes!!) helped bring us here.
I am forever grateful.