Back Home Again.

These last few days have been some of the happiest of my life.

going home(Getting ready to go home)

On Friday Felix was discharged from the hospital after 41 days. (Which is nothing compared to the 149 we did the first time.) It was a week after I gave him his last ADA injection. (He’d been receiving them twice a week for the last seven months.) Hooray!

We’d been waiting on some final blood work to see whether it was safe to bring him home. The results we got Friday morning were far, FAR above our expectations. (So much so that at first we were convinced it had to be an error.) The most important news we got was that Felix’s corrected cells have engrafted. His body is making its own ADA! The gene transfer is working!! (We won’t know whether the therapy was truly effective, however, for another four or five months). If we had the time and weren’t in isolation, I would totally have organized a party.

Our primary doctor was about to head out for vacation so she was particularly thrilled — after delivering the news she blew out of there with a huge weight off her shoulders. We walked out a few hours later without a note of fanfare.

Once again, I discovered that being home was even more wonderful than I’d anticipated. Our home is just so beautiful and cozy and perfect. (Even with half the siding missing.) I love it.

Felix is doing better than ever now that he’s home — his sleeping and eating have been fantastic. I feel like he’s already making progress developmentally after just a couple of days. He can always tell when we’re happy.

Sunday we celebrated Lydia’s fourth birthday at my in-laws’. We had a barbecue and I made my signature chick pea chocolate cake with beet cream cheese icing. Lydia had a ton of fun in the kiddie pool with her cousins and friend. It was a holy day.

lydia's fourth birthday

birthday celebration

The following day, her actual birthday, I was able to go to my parents’ house in the evening and put her to bed. What a gift it was to braid her hair, read her Bible story, and kiss her cheeks before tucking her into bed.

Ben and I also quietly celebrated our tenth wedding anniversary this weekend. We’re hoping to go out for dinner and a movie yet sometime this week. Ten years!! can you believe it?

I’ve done plenty of things wrong in my lifetime, but marrying Ben is the one thing I know I did right.

At home, I’m going crazy trying to reorganize our home for when we all live here together. I love it.

Thank you, thank you, thank you, everyone, for helping make this week happen. Your prayers, financial support, and emotional support (and Ontarians — your taxes!!) helped bring us here.

I am forever grateful.

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Comments

  1. Congratulations to your entire family! What a trip it has been since his birth. I am truly happy for you.

  2. Hi,
    You don’t know me but I stumbled across your blog when I was looking for a homemade deodorant recipe. I have been following your journey with Felix and am praising God with you for His abounding miracles. May He continue to bless you and keep you all as you journey through life in His path and may your children continue to grow in health and strength and your marriage only stronger and more fun everyday :)

    Blessings to you
    Linda

  3. So, so wonderful!!!

  4. Hooray, hooray, hooray! Oh, this made my night. I am so happy for all of you. Happy birthday to Lydia and happy anniversary to you!

  5. Kathy,
    The news about the treatment working for Felix made me shed a happy tear for you! Amazing! PTL

  6. Huzzah! Huzzah! Huzzah! *happy happy happy dance* I am, so, so glad! :-D

  7. Yay!!! Bless you all.

  8. Man, this was so good to read. Probably way better to live it!
    alison recently posted..A completely frivolous post about hairMy Profile

  9. Coriander says:

    Many thanks to God for His help and comfort! I am so glad to hear of your joy and happiness! Our little boys are almost the same age, and I think of you all often! I am so pleased for you and your family, and that you have gone from sorrow to gladness!

  10. This makes me so happy:) continued prayers!

  11. This is so, so, so good to read. Rejoicing with you and thanking God for the joy of the little things, like having all your own stuff around you. So much to celebrate!
    Abbey @ Surviving Our Blessings recently posted..Five-Minute Friday: LEARNMy Profile

  12. What wonderful news! I’m so happy for your family!
    Jennifer @ Little Silly Goose recently posted..Anticipating baby girlMy Profile

  13. What Linda said (except the bit about the deodorant). I’m so very happy for you. This is wonderful news. God is truly great.

  14. So, so pleased to hear this. Many prayers still coming your way for continued improvements and that you will soon have a good timeline for Lydia coming home too. Congratulations on 10 years!

  15. Praise Jesus. Welcome home Felix, Happy Birthday Lydia, and Happy Anniversary Ben & Kathleen. :-)

  16. I am so very happy to read this post! I hope that from here on it is smooth sailing for your family.

  17. HooRAAAAAY! All of this is wonderful news. So terrifically happy for you and your family–and our prayers go with you. :)

  18. Oh I am so happy to read this update!!!

    Congratulations on ten years! A marriage that has weathered infertility (x2!), and tragedy and still there is a strong marriage indeed! I hope you got a good celebration.

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