Felix Kicking Surgery’s Butt

felix 3 months old

Monday was a pretty lousy day for Felix.

He’d lost the IV in his foot the night before, and the nurses needed to start a new one to administer his daily meds. The IV specialist wasn’t in, so the regular nurses had to give in a try. When they couldn’t get one in after several tries, they called someone in from the NICU.

He got poked twelve times over the course of several hours before they called his primary doctor who told them to give up. He had wounds all over his scalp, hands and feet. He slept pretty much the rest of the day after that. Screaming that much can really wear you out.

The next day he was scheduled to get a central line put in — a tube that goes right into his chest into the major vein above the heart. He’ll need to be on constant intravenous medicine for the next several months, and we just can’t keep poking him for regular IVs like we have been. He had to fast for six hours, and be sedated and intubated for the procedure.

He took the whole ordeal like a champ. After he woke up he stayed awake and alert for the next two hours. It was like the surgery had never happened. By the next day he was on his tummy (as seen in the photo above. You can see the dressing under his sleeper). He got one dose of Tylenol and then never got any other pain med.

And besides the day of pokes, he’s been doing really great for the last two weeks. No fevers, no illnesses, nothing. Just a happy little guy, growing and learning. And we’re grateful for the central line — no more delicate IV’s in his head and feet. We can put normal clothes on him! He can wear hats! They can even take blood from this line. So instead of getting poked several times a week (IV’s, blood tests, etc), the only needles he’ll be getting are his twice-weekly injections.

Because he’s been doing so well, we got the green light to start working towards oral feeding again but so far he hasn’t been able to drink anything. He doesn’t remember how. It’s been over a month since he got anything orally. That’s the next big thing we’re going to work on.

But all in all, we’re feeling pretty good these days.

Thank you, God, for a couple of good weeks.

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Comments

  1. Way to go, Little Guy! Holding y’all in the Light as you journey with your boy. Thank you for allowing us to walk with you, bear this with you.

  2. This is such good news! We are continuing to keep Felix and his family in our prayers. He is such a cute little trooper. God bless.

  3. I’m glad to hear the surgery went so well! Keeping your family in our thoughts and prayers.
    Jennifer @ Little Silly Goose recently posted..Holidays at the new house part 2: Thanksgiving 2014My Profile

  4. Felix, you are awesome! We are some of your biggest fans, and you are never far from our thoughts. Great job on the surgery recup! You’ll get the swallow thing, we know it!!! <3 (I'm sure he'll read this one day, so I want to let him know I how we feel!)

  5. That is awesome news!! I am so happy for you all!!

    I am commenting for a very specific purpose. I have an 18 month old son who had an NG tube for 8 weeks (after cardiac surgery). Trying to get him off of that bugger was such an exercise in patience (and frustration) for me. Being an SLP myself, I knew that just anyone wouldn’t be truly capable of doing this type of intervention, as it’s such a focused area inside a very broad field. After many false starts with “feeding specialists,” we finally found the therapist who knew what she was doing, one who can be described as an – at minimum – regionally renowned feeding guru. Due to her work and insight and suggestions, my son was off his tube in a weekend. His feeding is still atypical and sometimes tedious, but we don’t have the darn tube taped to his cheek and dangling down in his throat. I am way south of you down in Texas, but I am quite certain his SLP would have some sort of contact for you, or at least suggestions of where to look for somebody who’s qualified to help, as the network of feeding therapists is apparently quite small. If you get to the point that you’d like me to ask her, I would be honored to help your family in this way. Just let me know!

    Praying for you and your whole family.

  6. This update put a big smile on my face. And look at him on his tummy! His eyes are so beautiful.

  7. My thanks to God as well!

  8. Bravo Felix! Bravo Mommy and Daddy! Bravo God for giving you strength and grace! What an adorable sleeper on an even more adorable baby. {{Hugs}} and prayers.

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