Please Pray for Felix

OLYMPUS DIGITAL CAMERAHi friends,

I just wanted to offer a quick update as I will probably not be blogging much in the next little while.

Monday I got a phone call from the newborn screening center, letting me know that Felix’s blood test got flagged for a rare, life-threatening disease called SCID — severe combined immune deficiency. Basically, this disorder means that the baby’s blood doesn’t have the necessary elements to fight infection, and is fatal if left untreated. This morning we had to drive in to the hospital two hours away to get him re-tested.

We already got some initial results which don’t look good — they seem to confirm the diagnosis. We still have to wait a week to get a full diagnosis, but we have to return to the hospital tomorrow morning to get him screened for any infections. If any are detected, he will have to be treated and possibly stay overnight to be monitored. Again, this hospital is two hours away from our home, which will mean another long day.

It’s been a long, long couple of days and I don’t have any emotion left. I just wanted to update you, my dear readers, and ask for prayer.

A few hours ago, I would have asked that you pray that the tests came back negative; but since that possibility seems less likely now, please pray that he has a less severe, more treatable form of the disease, and that we’ll be able to take him home tomorrow night. It is likely that we will be spending a lot of time in hospitals for the next weeks, possibly months.

Thanks so much for your continued love and support.

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Comments

  1. Praying.

  2. Grieving to hear of these new challenges, and praying.

  3. Praying praying, I could share some experiences, that guy fear so deep you can hardly breath, but that I suspect won’t be helpful, praying as this journey..whatever name you give it, praying as you begin it, you can do this…..one step at a time, in the dark, in the rain, foxes, hospitals…you can do this…..whatever this is…

  4. Praying.

  5. PepperReed says:

    Sending Peace and Light. God will give you strength to meet this…

  6. Praying for Felix and your family

  7. Oh, Kathleen. I’ll be keeping Felix and your whole family in my thoughts.

  8. Praying, Kathleen. <3

  9. Sitting here with tears for you. I’ve been there with babies in the hospital, will keep praying for strength and peace. And for a good diagnosis, our God is a God of miracles!
    Ruth Anne recently posted..Advent ramblingsMy Profile

  10. Praying for a miracle for your little guy.

  11. Praying.

  12. Praying!

  13. Katherine says:

    Praying for you & your family. May God bless Felix and give you strength each and every day.

  14. Osheta Moore says:

    I’m praying for healing for Felix and comfort for you. Lord, give my sister peace and rest, endurance and hope, wisdom and grace in this season. Amen.

  15. Praying for sweet Felix!

  16. I am so sorry, Kathleen for all the pain that this is bringing to you. I will definitely join in prayer for Felix’s health and God’s powerful presence with you all, holding you up.

  17. I will be praying for your family! I’m so glad they caught it early with him.

  18. I will be praying. May God’s peace surround you all, and our God who is mighty and the defender of the weak hold your precious Felix and carry you all. I looked after a little boy with SCID for many years as a RN, after many ups and downs he has now grown into a lovely young man. X

  19. I’m so saddened to hear this…praying for Felix that he will be strong despite what these tests are saying. Praying that you and Ben will have the strength you need to get through this together. Praying for your community as they wrap their arms around you. Praying for Lydia that she will have undertaking beyond her years. Praying that God will work miracles in your lives.

  20. That’s supposed to be understanding. Not undertaking. Dumb phone.

  21. Praying!

  22. What hard news to hear at this time! I join everyone here and add my amen to all our prayers.

  23. Praying for sweet Felix and for your whole family. <3
    Haley @ Carrots for Michaelmas recently posted..The Best Comfort Movies for a Sick DayMy Profile

  24. Sending prayers and good vibes your way! I hope everything turns out ok!

  25. Kathleen,

    I’m so sorry. This is so painful to read. I’ll be praying. And I believe in miracles and I believe that no prayer is too big or too small for Him. I am praying for that negative result.

    Much love.

  26. Jessica Christensen says:

    Praying so hard for Felix and your family.

  27. I am praying for you and Felix.

  28. Melissa Fulmer says:

    Praying Kathleen! I know our God will hold your precious family during this time (like he has done for ours and our precious little gift) and give you strength when it seems like none is left!

  29. Wow this is so intense. Praying … For grace and Hods presence and for the most possible good to emerge amidst this painful time. Wish in could offer some tangible support.
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  30. I hope things get better real soon. As we Quakers say, I will be holding your family in the Light. God bless.
    Ray Lovegrove recently posted..UpdateMy Profile

  31. Hi Kathleen.

    I am praying and sending positive vibes for Felix and your whole family.

    All the best. May God Bless you all

  32. Praying for you and Felix!!
    Laura @ Mothering Spirit recently posted..the blog book tour – day 2. surviving our blessings.My Profile

  33. Oh how overwhelming Kathleen! I’m praying for God to be with you and to bless Felix, and Lydia as she waits with you this week.
    Amy Rogers Hays recently posted..Fairytale Kings & Christ the King SundayMy Profile

  34. Oh Kathleen! My heart hurts for the situation you’re dealing with. Your family, especially little Felix will be in my thoughts.

  35. Praying.

  36. Definitely praying for you guys and sweet little Felix
    Hannah Corson recently posted..The Realities of Living in an Unfinished Tiny HouseMy Profile

  37. Prayers for you and your family. I am so sorry to hear this.
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  38. Praying . . .
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  39. Praying for healing for Felix! Just remember His name. And remember the name you gave Felix! I’m believing he will be strong and indeed be happy and victorious over this situation!

  40. Keeping you all in prayer, dear friend. Love to you.
    Beth recently posted..Win a Redmond Products Gift Set – earthpaste, salt, clay, soap, and more! (Christmas Giveaway Week 2014)My Profile

  41. Beloved, I pray that all may go well with you and that you may be in good health. 3 John 1:2
    Praying for Felix, and you, that the Lord would give you strength and peace and wisdom.

  42. My heart really goes out to you, Felix, and your whole family. I’ve had a child in hospital many times too, and it breaks my heart to hear you too must now face a challenge such as this. My thoughts are with all of you and I pray that little Felix comes through this with the best possible outcome.

  43. Prayers… so sorry to hear of this.

  44. Praying right now, Kathleen.
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  45. We are praying hard. Holding all of you in the Light.
    Abbey Dupuy recently posted..Why you MUST read Everyday Sacrament: The Messy Grace of Parenting {giveaway}My Profile

  46. Liz Smith says:

    I have been a reader for about a year now but I have never commented. I wanted to let you know that I will be praying for your little one daily. The Creator knit him together and knows every single part of him. May He give you peace and comfort in this time of uncertainty and fear. Sending you love!

  47. Aching for you and praying so much.

  48. Praying for all of you.

  49. I’m praying for you and your family right now. May the Lord strengthen you all and give you His peace that surpasses al understanding

  50. I am so very sorry for you and your family. Praying for all of you.

  51. Praying, too…

  52. Praying for you and you family! Such a hard thing so soon after Felix’s happy arrival. May you be surrounded by love and strength!

  53. What an unexpected turn of events in your motherhood journey! I know you and your family will face it with grace and grit, as you have done in so many other situations. Much Peace and Love to you all during this holiday season, and many prayers for little Felix Victor.

  54. Continuing to pray for your family, especially little Felix. Just letting you know there are still prayers coming your way.

  55. You and your family have touched me. When I started reading your blog, I was far from God. I was lost and praise him that he did not give up on me. Your blog showed me that I could be a Christian and be a decent human being in this world.
    I will pray for you as you commence this journey
    I pray that God gives you strength, courage and lots of love.
    I pray that Felix will lead a wonderful life, one protected by God.
    Our God is not dead, he is alive and has the power to heal both bodies and broken hearts.

    Stretching my arms out to you from the other side of this earth
    Annie, Alice Springs Australia

  56. Praying for your family.

  57. Hi Kathleen!

    Just stumbled upon you blog tonight and I really enjoy it and how you talk about Jesus and Minimalism. Did not see your most recent post until now and just want to let you know that I am praying for you guys and your beautiful brave Felix. Sending lots of love and warmth from Texas!

  58. Praying for your son and all your family. A friend of yours Susan Redekop comes to our Bible Study at FGT. She let us all know so we can be praying. May you feel God’s strength and love as He holds you. Much love, Sherry Stahl

  59. Prayers from Finland!
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  60. praying.

  61. Our thoughts and prayers are with you and your family. You’ll get through this, try to take things one day at a time. Hugs!

  62. Been praying

  63. I have been thinking of you and your family for days. Sending love and light your way.

    To anyone who would like to help Kathleen, her family has started a donation site:

    http://helpfelix.com
    Heidi @ Barefoot and Paleo recently posted..Severe Eczema Pictures and How We Used Natural Treatment for HealingMy Profile

    • I’m glad you posted that link, Heidi. I was about to do it myself. Kathleen–I wish I could have sent more. I wanted to do something. I don’t know you, but this heartbreak has been on my mind. Even three months in the hospital sounds incredibly challenging.Wishing and praying for the best.

  64. I’m so sorry to read this news, I can’t imagine how difficult this must be. I will be sending many prayers up for baby Felix, you, and your family.

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